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Project Title

The North Carolina Cleft Outcomes Study

Funding Dates



The North Carolina Cleft Outcomes Study was a 4-year study that examined patterns of short- and long-term health outcomes, health care use, and costs among children with and without orofacial clefts (OFC). The study involved a longitudinal, retrospective, and prospective case control study of North Carolina (NC) resident children born 2001-2012. The primary objective was to describe short- and long-term health outcomes for children with OFC, with a special focus on factors related to educational outcomes (reading and writing), behavioral/psychological outcomes (attention deficit disorder), developmental disability, and referral to early intervention. These outcomes were compared to children without this condition in NC. A secondary objective was to assess health service use, including referral to and use of genetic services, surgical outcomes, costs of team care, out of pocket expenses, and caregiver costs among families of children with OFC in NC.

Research Areas 

Children’s Health
Additional Topics

Principal Investigator

Ronald Strauss, DMD, PhD


Centers for Disease Control and Prevention